Our Values
Meaningful Research
Family-Centred Care
Lasting Impact
Listening to the people with lived experience to provide meaning and understanding to biological research.Â
Families are equal partners in our research. This research would not be possible without the collaboration of our family partners.
Turning research into action that aims to improve the quality of life and support for children with medical complexity and their familiesÂ
Studies Currently Recruiting
A study for siblings
Epigenetic Age as a Biomarker of Health Fragility in Children with Severe Neurological Impairment with Static Encephalopathy (SNI-SE)
This study aims to better understand why some children experience more medical challenges than others. We are exploring whether small changes in DNA, measured using a simple cheek swab, may help us learn more about patterns of health and resilience over time.
A study for caregivers
Caregiver Perspectives on Epigenetic Aging in Children with
Severe Neurological Impairment with Static Encephalopathy (SNI-
SE)
This study aims to understand how caregivers of children with severe neurological impairment think about epigenetic aging. We want to learn what this type of information might mean to families, what questions or concerns they may have, and how they would like it to be communicated.